We had our follow up appointment with our developmental pediatrician today. Earlier this month, I did post that all of the genetics testing (FISH, Angelman's, Fragile X, etc...) that we had done came back negative but now the doctor is asking us to come in for an MRI and Urine Organic Acid test. Not that either of these things have a high chance of revealing the cause of all this but just to have a better understanding.
The doctor also did his normal spill about how diets, supplaments, etc... will not work or be worth my time. Which is fine that he has that opinion but I don't know why in heck he has to be so very anti biomedical. I don't understand why most doctors are not even open to giving these types of things trial periods. Which brings me to my next point.
I have been posting on a developmental delays/concerns board since March of this year. There is also an ASD board with a lot of good information but some of the stories make me very sad so I try not to read too much there but there is a plethora of information regarding GF/CF, Feingold, supplaments, and therapies. If you have read my blog lately, you know that we have not seen any dramatic or really even subtle changes in Austin during these first two months on GFCF but I can't help but wonder if there are more things that we can be doing to help. Unfortunately seeing a DAN! dr. is just not in the cards for us right now but I am seriously considering eliminating soy and doing Feingold in addition to GFCF. I am also thinking about ordering a few supplaments. From what I have heard, Kirkman Labs has trial portions that are around $3 so that you can see if they might help your child out before you buy a large bottle.
It's still something that DH and I are talking about but I honestly don't know if I can just give up knowing that there is other things that I never gave a shot. I would always be wondering what if.
Friday, November 30, 2007
Monday, November 26, 2007
I've been tagged!
My blog was tagged so I have to post 8 random things about myself and tag 8 other blogs. So here ya go:
1.) I love Harry Potter books/movies. They may be for kids, but I'm hooked!
2.) McDonalds is one of my favorite fast food places. No matter what kind of horror stories there are about their food and restaurants, I will always eat there.
3.) I'm a t.v. addict. I seriously have at least 2 or more shows on every night of the week that I MUST watch.
4.) I love to read although I never get much time to do it these days. I'll read almost anything but true crime is a favorite of mine.
5.) I do not watch horror/scary movies. When things jump out at me, I literally feel like I am having a heart attack. This is one of DH's pet peeves as he loves scary movies and would love me to watch them with him.
6.) I would much much much rather be in sweat/pajama pants and t-shirts then normal clothes. I do get dressed to go out to the store and such but I pretty much live in comfy clothes whenever possible.
7.) My family is everything to me. I'm sure that is pretty much standard as a mom, but I would do anything for them. The best thing is just spending time with them.
8.) I'm pregnant with baby number 2. I have not mentioned that on this blog yet but all my friends and family already know. My due date is May 1, 2008 and we are really excited!
1.) I love Harry Potter books/movies. They may be for kids, but I'm hooked!
2.) McDonalds is one of my favorite fast food places. No matter what kind of horror stories there are about their food and restaurants, I will always eat there.
3.) I'm a t.v. addict. I seriously have at least 2 or more shows on every night of the week that I MUST watch.
4.) I love to read although I never get much time to do it these days. I'll read almost anything but true crime is a favorite of mine.
5.) I do not watch horror/scary movies. When things jump out at me, I literally feel like I am having a heart attack. This is one of DH's pet peeves as he loves scary movies and would love me to watch them with him.
6.) I would much much much rather be in sweat/pajama pants and t-shirts then normal clothes. I do get dressed to go out to the store and such but I pretty much live in comfy clothes whenever possible.
7.) My family is everything to me. I'm sure that is pretty much standard as a mom, but I would do anything for them. The best thing is just spending time with them.
8.) I'm pregnant with baby number 2. I have not mentioned that on this blog yet but all my friends and family already know. My due date is May 1, 2008 and we are really excited!
Sunday, November 25, 2007
2 months in
So yesterday was 2 months on this diet. We still have not seen any results and are more and more frustrated each day. I have read about the gluten taking up to 3 months to leave the system but to not see ANY change in behavior is not encouraging me. There has been little developments like riding on his car and learning "book" sign but those are things I really feel he would have picked up b/c we were doing those things on a daily basis.
DH and talked briefly about it and we are not sure whether to continue on for another month, try to eliminate more items such as soy, or to give up. When I started I knew that the diet may or may not work and it's possible that it just may not be for Austin but it is just crappy to see that this hasn't worked so far b/c we were hopeful after most of our therapists said that he would be a good candidate for the diet do to some possible food allergies.
DH and talked briefly about it and we are not sure whether to continue on for another month, try to eliminate more items such as soy, or to give up. When I started I knew that the diet may or may not work and it's possible that it just may not be for Austin but it is just crappy to see that this hasn't worked so far b/c we were hopeful after most of our therapists said that he would be a good candidate for the diet do to some possible food allergies.
Friday, November 16, 2007
It's been a while!
I haven't posted in a bit but I haven't really had much to report. We are finally starting Occupational Therapy again on the 26th but we still don't have a new Speech Therapist which is terrible but we are working with Austin at home using techniques that we have learned with previous therapists.
When we went to the developmental pediatrician, Austin had bloodwork done to see if his Autism or delays could be attributed to genetics. He was tested for FISH, Angelmans, Fragile X, and some other DNA general stuff and we just found out all of tests came back negative. We were pretty sure that would happen but the doctor did wonder about Fragile X and that has had me on edge for a few weeks b/c Austin does have some signs of that. I can honestly say that it is a relief b/c now I still feel like I can hope that one day he will just catch up to others his age especially with therapy and possibly with being GFCF.
Other than that, not much has been going on except that we are getting ready for Thanksgiving and Christmas and doing a bit of shopping. And I am planning to make a Austin a GFCF Thanksgiving meal! We would not want him to miss out on all that goodness!
When we went to the developmental pediatrician, Austin had bloodwork done to see if his Autism or delays could be attributed to genetics. He was tested for FISH, Angelmans, Fragile X, and some other DNA general stuff and we just found out all of tests came back negative. We were pretty sure that would happen but the doctor did wonder about Fragile X and that has had me on edge for a few weeks b/c Austin does have some signs of that. I can honestly say that it is a relief b/c now I still feel like I can hope that one day he will just catch up to others his age especially with therapy and possibly with being GFCF.
Other than that, not much has been going on except that we are getting ready for Thanksgiving and Christmas and doing a bit of shopping. And I am planning to make a Austin a GFCF Thanksgiving meal! We would not want him to miss out on all that goodness!
Wednesday, November 7, 2007
New Food!
So if you have been reading my blog, you know I live in the middle of nowhere and I hate venturing off but today I had to get out for a doctor's appt. so I finally located the massive health food store!! I am so impressed. The only other store like that that I have been to was Whole Foods Market when I lived in Illinois and then we weren't really looking for GFCF foods so I had no idea how much these other stores carry.
I found so much goodies that I have read about like Toffuti cheese, all sorts of pastas, even pizza, cookies, bars, cereals...I could go on and on! Anyhoo, I stocked up for Austin and now he can have tons more variety. Tonight he had bean and cheese nachos. Not much but I was excited to use the cheese :) I am planning on trying a version of mac and cheese at some point so good luck to me.
I have been just finding one or two items at the local grocery store and my MIL actually sent me the only pasta I had. So if you are trying this diet for the first time, a visit to a good health/natural foods store is a must!
I found so much goodies that I have read about like Toffuti cheese, all sorts of pastas, even pizza, cookies, bars, cereals...I could go on and on! Anyhoo, I stocked up for Austin and now he can have tons more variety. Tonight he had bean and cheese nachos. Not much but I was excited to use the cheese :) I am planning on trying a version of mac and cheese at some point so good luck to me.
I have been just finding one or two items at the local grocery store and my MIL actually sent me the only pasta I had. So if you are trying this diet for the first time, a visit to a good health/natural foods store is a must!
Monday, November 5, 2007
He's telling me he's thirsty!!!!!
Austin is now leading me to the kitchen on a consistent basis and while at first I had no clue what he wanted, he is now finding his cup and bringing it to me before he takes my hand!!!
This may not sound as spectacular as I'm making it out to be but before this, Austin has never communicated to us when he is hungry or thirsty. So I think it is pretty awesome that he has figured out a way to tell me what he wants/needs!
On another good note, he really seems to be picking up the sign for "book". For a few months now, he always brings us books that he wants us to read to him and puts them in our lap but I know he needed a word so I've been teaching him book. He has been letting me do it hand over his hands but yesterday he did it for the first time by himself. It will take a while but at least I know that he knows what it means and he knows he needs to do it in order for us to read to him.
This may not sound as spectacular as I'm making it out to be but before this, Austin has never communicated to us when he is hungry or thirsty. So I think it is pretty awesome that he has figured out a way to tell me what he wants/needs!
On another good note, he really seems to be picking up the sign for "book". For a few months now, he always brings us books that he wants us to read to him and puts them in our lap but I know he needed a word so I've been teaching him book. He has been letting me do it hand over his hands but yesterday he did it for the first time by himself. It will take a while but at least I know that he knows what it means and he knows he needs to do it in order for us to read to him.
Friday, November 2, 2007
Halloween & some other progress
Halloween was fun for us. We almost didn't go b/c we waited until the last minute to get a costume hence the lack of creativity but we found one 15 minutes before time to go (literally) and went out with two other couples and their kids. We stayed only on our block but we hauled in plenty of loot. Austin held my hand the entire time (which is good, b/c sometimes he wants to run away) and we walked up to the doors together. He didn't understand the concept of holding his bag out and he picked out candy a few times but ended up putting it back but it was still fun for me to get to do that with him. He also was not scared of any other kids; there were lots of them and some of them were loud so that was nice. In general, he was probably just happy to be outside.
Yesterday was a great day. Austin was in a very happy mood and he had no temper tanturms which was really nice b/c they seem to be increasing daily. And then this morning, I was sitting on the couch and he came over, grabbed my hand, and pulled me really hard like he wanted me up. So I got up and he continued pulling me until he had succeeded in getting me to the kitchen!!! Once we got there, he didn't really do anything but kinda wimper so I assumed he wanted to eat b/c he had just had juice. So I gave him a snack size serving of cereal and all was good after that. I really do hope he was telling me that he was hungry!!!
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